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The development of a quality of life scale for informal carers for older adults

journal contribution
posted on 2020-04-01, 16:23 authored by John Maltby, Eef Hogervorst, Blossom Stephan, Xu Sun, Pinyan Tang, Effie Law, Elizabeta Mukaetova-Ladinska

Background.

The aim of the study was to develop a multi-dimensional quality of life instrument suitable for use among individuals across cultures who have an informal care role for older persons.

Methods.

Participants were informal carers of older adults in the UK (n=308), USA (n=164), and China(n=131). We carried out exploratory and confirmatory factor analyses of 61 items derived from the eight-factor Adult Carers Quality of Life questionnaire with newly added items to define both traditional and non-traditional informal care roles.

Results.

Findings suggest a 24-item quality of life scale with a six-factor structure to caring for older adults that assesses (1) exhaustion, (2) adoption of a traditional carer role, (3) personal growth, (4) management and performance, (5) level of support, and (6) financial matters.

Conclusion.

We present a new scale to assess the multi-dimensional aspects of quality of life among those caring for older adults.

History

Citation

Gerontology and Geriatric Medicine (2020) In Press

Version

  • AM (Accepted Manuscript)

Published in

Gerontology and Geriatric Medicine

eissn

2333-7214

Acceptance date

2020-03-30

Copyright date

2020

Publisher version

TBA

Notes

Data reported in this study will be available at the University of Leicester data repository: https://leicester.figshare.com/.

Language

en

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