File(s) under embargo
Reason: 12 month embargo
until file(s) become available
More than words: Parent, Patient and Public Involvement perspectives on language used by clinical researchers in neonatal care
journal contributionposted on 21.09.2022, 14:12 authored by B Moss, W Lammons, S Johnson, R Ribas, S Uthaya, C Battersby, V Cornelius, D Babalis, N Modi
In this qualitative study exploring parent views of information about research studies, we found they accepted uncertainty as justification, and that three key aspects of language - words, tone, and pace - influence parents' decision about their baby's inclusion. We recommend parents are routinely involved in developing information materials.