Understanding and supporting women with polycystic ovary syndrome: a qualitative study in an ethnically diverse UK sample.pdf (1.94 MB)
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Understanding and supporting women with polycystic ovary syndrome: a qualitative study in an ethnically diverse UK sample

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journal contribution
posted on 31.01.2018, 13:50 by Michelle Hadjiconstantinou, Hamidreza Mani, Naina Patel, Miles Levy, Melanie Davies, Kamlesh Khunti, Margaret Stone
OBJECTIVE: Polycystic ovary syndrome (PCOS) is a lifelong condition. Its symptoms have been linked with psychological consequences, but less attention has been given to the daily implications of living with PCOS. We aimed to explore women's experiences living with PCOS, and the potential acceptability of group education sessions for this target group. METHODS: Women with PCOS were recruited from an ethnically diverse UK community. Twelve semi-structured interviews were conducted. Analysis was underpinned by the constant comparative approach and involved the identification and exploration of key themes. RESULTS: Participants reported a range of symptoms linked with PCOS, including problems relating to menstruation and weight difficulties. Hirsutism was reported as the most distressing symptom. Emergent themes included perceptions about symptoms and delays in receiving a diagnosis; psychological distress; practical implications of living with the condition; coping with PCOS and perceived support needs. Some findings were specific to cultural backgrounds. Participants were supportive of the idea of group education for women with PCOS and suggested a need to provide education within the community and health care providers. DISCUSSION: Women with PCOS experience high psychological distress and difficulties with coping with their condition. Suggested strategies to reduce the negative psychological impact include education at various levels.

History

Citation

Endocrine Connections, 2017, 6 (5), pp. 323-330

Author affiliation

/Organisation/COLLEGE OF MEDICINE, BIOLOGICAL SCIENCES AND PSYCHOLOGY/School of Medicine/Department of Cardiovascular Sciences

Version

VoR (Version of Record)

Published in

Endocrine Connections

Publisher

BioScientifica

issn

2049-3614

Acceptance date

16/05/2017

Copyright date

2017

Available date

31/01/2018

Publisher version

http://www.endocrineconnections.com/content/6/5/323

Language

en